DIAMOND BLACKFAN ANEMIA FOUNDATION
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votesThe mission of the Diamond Blackfan Anemia Foundation, Inc. (DBAF) is to collectively and actively generate funds for the charitable and scientific purpose of furthering, by clinical study, laboratory research, publication and teaching, the knowledge of the disorder known as Diamond Blackfan Anemia (DBA). Our intentions are to share this knowledge, to inform, to lend support, and to communicate with all families of DBA patients.
www.dbafoundation.org/donate.phpDawn Baumgardner
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twitter.com/DBAFoundation
North American DBA families: Don't miss out on important information. Register today! http://t.co/kq3ma4IU6W 59 days ago
Be sure to "like us" on Facebook for news, updates, information and announcements. https://t.co/jwj8efvNkF 62 days ago
CAMP SUNSHINE APPLICATIONS ARE AVAILABLE for this year's family retreat in July. See our website for important details. http://t.co/HmbELbtN 106 days ago
Please visit our website to read an important patient opportunity announcement from the DBA Registry (DBAR). http://t.co/8zLbbZ5V 110 days ago
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25 comments
Hola a todos, Os agradecerÃa muchÃsimo si podéis entrar un momento en este enlace y votar. Es un enlace de Chase Giving, entidad que recauda fondos para asociaciones la cual, del 6 al 19 de septiembre, desarrolla una campaña para recaudar fondos para investigar sobre la Anemia Blackfan Diamond (DBA), enfermedad rara que padece mi sobrina. A más votos más dinero para investigar. Si podéis difundidlo a vuestros contactos, ¡os lo agradecerÃa doblemente! Un fuerte abrazo a todos!
September 6 at 6:49amWe need everyone's help! Please VOTE for DBAF. We are so rare and such a small family we need ALL our friends to help support this chance to raise funds.
September 6 at 6:58amThey need so much support...please vote for DBA Foundation!
September 6 at 7:03amPlease vote for Diamond Blackfan Anemia, a small but mighty charity run by volunteers that is making great strides in research for this blood disease.
September 6 at 8:34amMy son has Diamond Blackfan Anemia and I can not begin to tell you the lifeline this organization has been for us. From putting us in touch with the doctors who have the most experience in this field to giving us hope through research for a cure. PLEASE give this amazing charity your vote. My son & I greatly appreciate it.
September 6 at 9:01amHi, have Diamond Blackfan anemia and ive had it since I was a newborn, I rely on transfusion every 4 weeks to live, I would love it if you could vote for DBAF! Thanks!
September 6 at 6:09pmI have Diamond Blackfan Anemia, a rare and life-threatening bone marrow failure disorder. I rely on blood transfusions every 5 weeks to live. Please take a few seconds of your time to vote for Diamond Blackfan Anemia Foundation to receive some much needed funds for research. Your vote is greatly appreciated! Thanks!
September 6 at 8:14pmHi! Thank you for voting! My son, Kyler Kasper has DBA and he is a blessing. Without support, he would not be with us. He gets through life by Gods grace and help from others. Please help and vote!
September 6 at 9:58pmMy son has DBA and we are praying for a cure! There are no perfect treatments for DBA but the DBA foundation continues to work hard at informing patients and their families about this rare and potentially fatal disease, however this is not possible without funding! PLEASE vote for Diamond Blackfan Anemia!
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September 6 at 4:53am